Program Information

What is the Colorectal Program?

The Colorectal Program at Stanford Children's Health is a comprehensive service for children with the following conditions:

  • Hirschsprung Disease

  • Anorectal malformations

  • Cloacal anomalies

  • Chronic Idiopathic constipation

  • Neurogenic bowel

  • Fecal Incontinence

  • Anterior anus

  • Motility disorders

  • Rectal prolapse

  • Spina Bifida

 

Procedures include:

  • Posterior Sagittal Anorectoplasty (PSARP)
  • Laparoscopic Pull through for Anorectal malformations
  • Laparoscopic assisted pull through for Hirschsprung disease (Soave, Swenson and Duhamel)
  • Colostomy and Ileostomy
  • Colonic Resection
  • Rectal Biopsy
  • Anorectal Exam under Anesthesia with Pena Stimulation
  • Antegrade Enema Procedures (Laparoscopic Chait Cecostomy tube placement, ACE procedure)
  • Mitrofanoff, Monti procedure and vesicostomy 
  • Redo pull through for Hirschsprung disease and anorectal malformations
  • Multidisciplinary cloacal repair with our Pediatric Urology and Gynecology teams
  • Colonic Manometry
  • Anorectal Manometry
  • Anal Botox Injection

 

Services include:

  • A multidisciplinary clinic with specialists in Pediatric Colorectal Surgery, Urology, and Gynecology
  • A Bowel Management program
  • Advanced imaging for preoperative planning of anorectal malformations with a dedicated pediatric radiologist
  • A GI Motility Program using specialized techniques like anorectal and colonic manometry
  • Occupational Therapy/Physical Therapy for pelvic floor training and biofeedback to address stooling disorders/fecal incontinence

  • Pregnancy collaborations with expertise from the pediatric teams to provide safe OB management as well as from the pediatric adolescent gynecology team to provide expertise later in life in regard to sexual health.

  • Pediatric neurosurgical consultation for conditions such as tethered cord

 

Bowel Management

The clinic uses a team approach and provides a full evaluation of each new patient to determine an individualized plan which includes the best combination of medical and/or surgical multimodal therapies to achieve continence and avoid chronic constipation. Therapies include oral laxatives, antegrade (chait cecostomy/MACE) and retrograde enema therapies (Peristeen/Navina device), Biofeedback and Pelvic Floor Therapy. 

Prior to the Clinic Visit

The bowel management program is designed as a partnership between the family and provider team to best capture the child's stooling pattern and then create an individualized regimen specific to their needs.

Before coming to your child's Colorectal Clinic appointment, please be sure to complete the 1-week bowel record for your child and bring it with you. Completing this form will help and enable us to determine the best bowel regimen for your child. 


Stool Chart (for children)
Source: The Bristol Stool Form Scale

Laxative and Enema Trials

The trial begins with a clinic visit and may include bowel clean outs, serial x-rays, and adjustments to the laxative or enema regimens. You and your child will meet with our colorectal surgeons and advanced practice providers (NP/PA) who will work with you to establish an individualized plan of care. The goal of these trials is to achieve days free of fecal accidents. Trials can be conducted on an outpatient or inpatient basis based on patient need. 

Most of the children who are in this program will need to maintain a long-term bowel management regimen. We are committed to helping them be successful while providing individualized care. 

Pediatric Surgery Colorectal Clinic Intake Form

Our Team - Multidisciplinary Pediatric Colorectal Program

 

 

Julie Fuchs, MD

Colorectal Program Director, Pediatric Surgeon

 

 

 

Claudia Mueller, MD, PhD

Pediatric Surgeon

 

 

 

Shikib Mostamand, MD

Pediatric GI Motility

 

 

 

Stephanie Cizek, MD

Pediatric & Adolescent Gynecology

 

 

 

Erin Grantham, MD

Pediatric Urology

 

 

 

Kelly Mahaney, MD

Pediatric Neurosurgery

 

 

 

Ali Syed, MD

Pediatric Radiology

 

 

 

Eiri Inenaga, OT

Biofeedback and Pelvic Floor Therapy

 

Juliana Ma Crawford, PA; Lead Colorectal Advanced Practice Provider

Blaine Robinson, NP

Clinic Locations

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Colorectal Clinic

730 Welch Road, 2nd Floor
Palo Alto, CA 94304
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Palo Alto Clinic:

Phone: (650) 723-6439

Fax: (650) 725-5577

X-Ray Clinic Available

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Colorectal Clinic

1100 Van Ness Ave, 7th Floor
San Francisco, CA 94109
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San Francisco Clinic

Phone: (650) 723-6439

Fax: (650) 725-5577

X-Ray Clinic Available

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Colorectal Clinic

14601 South Bascom Ave, Suite 200
Los Gatos, CA 95032
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South Bay Clinic

Phone: (650) 723-6439

Fax: (650) 725-5577

For X-Rays, please visit our Sunnyvale location at 1195 West Fremont Ave (see below)

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Multidisciplinary Clinic

1195 West Fremont Ave
Sunnyvale, CA 94087
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Multidisciplinary Clinic (MDT)

Phone: (650) 723-6439

Fax: (650) 725-5577

Includes Colorectal, Gynecology and Urology

Contact Information

For more information about Stanford Children's Health Colorectal Program, call our office at (650) 723-6439 or email: pedsurg@stanfordchildrens.org

Family & Patient Testimonials

At Stanford Children’s Hospital Colorectal Program, our hope is to understand and support our patients who lead varied, complex and multi-layered lives as they navigate through their medical journeys to manage their respective colorectal issues from birth to young adulthood.

We welcome their testimonials, and share them here with you.

Mother of 6 year old with imperforate anus

"We are so fortunate to have the best care for our son at LPCH. The bowel management team has helped us to feel that we are not alone with this. We have had a great support from all his doctors. They have guided us with the best studies and management for our son's bowel movements. My son has received lots of love, and different alternatives to help him. A special thanks to Claire who, no matter what, is always there to help us. His doctors are angels on earth to always be thankful!!"

Mother of 9 year old with Hirschsprung's disease

“I want to thank the management program for helping me to get ahead with my son and thank God that he put these people towards my way to be able to help my son. The surgeon,  Dr. Mueller and nurse practitioner, Claire Abrajano, I thank you very much.  And to all the people I recommend this program of bowl management for their children.  They are very professional, without them I do not know what I would do with my son and thanks to God I was touched by people like them during this time. I want to recommend this program and this group of doctors for their children who need bowel management. And that God keep blessing them so they can help many children like my son to get ahead.”

Mother of 6 year old with imperforate anus

“The bowel management program has always gone above and beyond when it comes to helping my son and getting his needs met. The group has always been great at making my son feel comfortable as well as making sure my husband and I are comfortable with any treatment plan we try.”

Resources

The Division of Pediatric General Surgery offers an extensive online resource of general health information. Please do not substitute information on this website for professional advice, a diagnosis of your condition, or a recommendation about the course of treatment for your particular circumstances. This information is not intended to be, and should not be used as, a substitute for medical treatment by a health care professional. You should never disregard or delay seeking medical advice because of what you have read on this website.

Pull thru network - https://pullthrunetwork.org/

Youth Rally - https://youthrally.org/

1 in 5000 - http://www.onein5000foundation.org/aims

 

We have this book available to provide to patients in our clinic:
The Strength of my Scars: Hirschsprung's Disease: My Missing Rocket Launchers
https://strengthofmyscars.com/products/hirschsprungs-disease-my-missing-rocket-launchers

 

We are a participating institution of the Pediatric Colorectal and Pelvic Learning Consortium: https://www.pcplc.org/

 

Bristol Stool Form Scale (for children)

Bowel Record Chart

Coloplast Peristeen Rectal Irrigation System

Navina Irrigation System

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Enema Education Materials

Enema Demonstration

Peristeen safety

Demostración de enema

Peristeen de forma segura